El Paso

FINDING A CURE: Family holds fundraising event for rare disease

Fundraiser for mitochondrial disease res

Thursday ABC-7 introduced you to Emma Boggs, an El Paso toddler diagnosed with a rare disease. Emma has a rare form of Mitochondrial disease called Leigh Syndrome. The disease may eventually lead to organ failure. It has no treatment and no cure.

Saturday the family held an event to raise money for research. Get Lifted Gym hosted the event. They sold t-shirts and wristbands. All money raised is going toward the United Mitochondrial Disease Foundation. 

Emma's parents, Courtney and Jacob, said they're blown away by the support they've received. 

"Emma's going to make it, she's going to be the miracle baby," Jacob Boggs said. "She's going to set the new standard of Mitochondiral disorder and how to beat it."

"Until I die, I'm going to fight for these kids," Courtney Boggs said. 

If you want to raise awareness online, use the hashtag #TogetherWeFightMito.

Watch ABC-7's original story about Emma here. 

If you would like to donate to the "Together We Fight Mito" campaign, click here.

If you'd like to donate to Emma's campaign, click here.


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